A Matter Of Appearance : A Memoir of Chronic Illness
by
Emily Wells
Book Details
Format
Paperback / Softback
ISBN-10
191171001X
ISBN-13
9781911710011
Publisher
Seven Stories Press UK
Imprint
Seven Stories Press UK
Country of Manufacture
GB
Country of Publication
GB
Publication Date
May 18th, 2023
Print length
144 Pages
Weight
258 grams
Dimensions
20.90 x 14.00 x 1.50 cms
Product Classification:
Memoirs
Ksh 1,800.00
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Emily Wells, a former ballerina, spent her childhood dancing through intense, whole-body pain she assumed was normal for someone used to pushing her body to its limits. For years, no doctor could tell Wells what was wrong with her, or they told her it was ''all in her head.'' It was only in college that she learned the name for the illness she had been suffering from all her life: Behcet''s Disease, a rare congenital disorder causing blood vessel inflammation throughout the body, arthritis, and swelling of the brain. In A Matter of Appearance, Wells, now a professor of creative writing at UC Irvine, traces her journey as she tries to understand and define this specific and personal pain, internally and externally. She draws on the critical works of Freud, Sontag, and others to explore the intersection between gender, pain, and language, tracing a line from the ''hysteria patients'' documented at the Salpªtri¬re Hospital in nineteenth-century Paris through to the contemporary New Age healers of Los Angeles and beyond. At the crux of this is the dilemma of how to express in words an experience that is both private and public, subjective, and quantifiable.
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