Offers the first full-length study of Cicely Saunders' idea of 'total pain', providing a fresh perspective on the ambiguous place of narrative in healthcare
Introduced in 1964, Cicely Saunders term total pain has come to epitomise the holistic ethos of hospice and palliative care. It communicates how a dying persons pain can be a whole overwhelming experience, not only physical but also psychological, social and spiritual. Total pain clearly summarises Saunders whole-person, multidisciplinary outlook but is it a phenomenon, an intervention framework, a care approach or something else? This book disregards the idea that Saunders phrase has one coherent meaning and instead explores the multiple interpretations now current in contemporary professional discourse. Using close reading of Saunders extensive publications, as well as archival evidence and Saunders own personal library, it situates the current usage of total pain in wider histories of clinical holism, questions its similarity to later ideas of narrative medicine, and explores how it might express the ambiguities of bearing witness to pain and vulnerability when someone is dying.
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