Clinical Data as the Basic Staple of Health Learning : Creating and Protecting a Public Good: Workshop Summary

Successful development of clinical data as an engine for knowledge generation has the potential to transform health and health care in America. As part of its Learning Health System Series, the Roundtable on Value & Science-Driven Health Care hosted a workshop to discuss expanding the access to and use of clinical data as a foundation for care improvement. Table of ContentsFront MatterSummary1 Clinical Data as the Basic Staple of the Learning Health System2 U.S. Healthcare Data Today: Current State of Play3 Changing the Terms: Data System Transformation in Progress4 Healthcare Data: Public Good or Private Property?5 Healthcare Data as a Public Good: Privacy and Security6 Creating a Next-Generation Data Utility: Building Blocks and the Action Agenda7 Engaging the Public8 Clinical Data as the Basic Staple of Health Learning: Ideas for ActionAppendixesAppendix A: Workshop AgendaAppendix B: Biographical Sketches of Workshop ParticipantsAppendix C: Workshop Attendee ListAppendix D: The IOM Committee on Health Research and the Privacy of Health Information: The HIPAA Privacy RuleOther Publications in the Learning Healthcare System Series