Coping with Huntington's : A Path to Better Mental Wellbeing

This book is a compassionate guide providing practical yet therapeutically oriented mental health support and self-care strategies for people with Huntington’s disease and their families to empower them in navigating this journey with hope and clarity.

Coping with Huntington's is a compassionate guide providing practical yet therapeutically oriented mental health support and self-care strategies for people with Huntington’s disease (often referred to as HD) and their families, to empower them in navigating this journey with hope and clarity. It offers strategies for self-help and wellbeing that are firmly grounded in the principles of Acceptance and Commitment Therapy (ACT). It bridges professional and personal insight by bringing together the author’s expertise as a clinical psychologist and researcher, and lived experience as a member of a family affected by Huntington’s. Topics covered include, but are not limited to:Physical symptoms and mental health difficulties associated with Huntington’sUnderstanding Huntington’s in both individual and family contexts, including impacts across familiesBenefits of ACT strategies for managing difficulties associated with Huntington’sPractical guidance aligned with ACT around emotional resilience, acceptance, and meaningful livingThe book covers impacts on people with the Huntington’s gene expansion, and also explores the experiences of “at-risk” family members, people without the gene expansion, caregivers and loved ones, and specific challenges that these respective groups may face. With evidence-based strategies to support mental health and wellbeing, this is a compelling read for families and individuals with lived experience of Huntington’s disease. It will also interest practitioners and healthcare professionals who wish to better understand Huntington’s and provide more effective support.