Floppy : Tales of a Genetic Freak of Nature at the End of the World
Book Details
Format
Paperback / Softback
ISBN-10
1636280978
ISBN-13
9781636280974
Publisher
Red Hen Press
Imprint
Red Hen Press
Country of Manufacture
GB
Country of Publication
GB
Publication Date
Jul 13th, 2023
Print length
280 Pages
Weight
346 grams
Dimensions
14.00 x 21.60 x 1.80 cms
Product Classification:
Memoirs
Ksh 2,500.00
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One of the first books to explore the emotional landscape of living with Ehlers-Danlos syndrome from a patient’s perspective; a playful story of falling down, getting back up again, and realizing you should have gone to the hospital sooner.
When ten-year-old Alyssa is diagnosed with the rare genetic connective tissue disorder Ehlers-Danlos syndrome, she vows not to let it stop her. Unfortunately, her efforts to avoid being "too sensitive" lead her to neglect not only her health but other aspects of her life as well. Twenty years later, shes finally forced to confront the reality of her condition head on. When she finds herself tangled in an unwieldy combination of chronic pain, a library job for which she is particularly ill-suited, and her wifes mystifying health problems, her body starts to unravel in ways she can no longer ignore. If pushing through is not the answer, what does homecoming to her floppy body even look like?
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