Sharing Linked Data for Health Research : Toward Better Decision Making
Book Details
Format
Paperback / Softback
Book Series
Cambridge Bioethics and Law
ISBN-10
1108445365
ISBN-13
9781108445368
Publisher
Cambridge University Press
Imprint
Cambridge University Press
Country of Manufacture
GB
Country of Publication
GB
Publication Date
Feb 13th, 2025
Print length
277 Pages
Weight
418 grams
Dimensions
15.10 x 22.80 x 1.70 cms
Ksh 5,100.00
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This book will benefit researchers and research institutions by explaining the regulatory environment for access to government held data for research. The book will also be valuable to government policy makers and decision-makers around the world by providing comparative examples of global best practice to guide reform.
Health research around the world relies on access to data, and much of the most valuable, reliable, and comprehensive data collections are held by governments. These collections, which contain data on whole populations, are a powerful tool in the hands of researchers, especially when they are linked and analyzed, and can help to address wicked problems in health and emerging global threats such as COVID-19. At the same time, these data collections contain sensitive information that must only be used in ways that respect the values, interests, and rights of individuals and their communities. Sharing Linked Data for Health Research provides a template for allowing research access to government data collections in a regulatory environment designed to build social license while supporting the research enterprise.
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